Early relapse ... confirmed.

Ben, at Children’s Hospital, creating one of his many novels.

Last week’s tests pointed out there there was 1% leukemia in Ben’s body. After more detailed tests over the weekend, it was found that he has 3.5% leukemia. This Tuesday we found out that Ben has had a second relapse of leukemia. It's not a full blown relapse but an early one. Since he relapsed during chemo, it means that chemo is no

longer eKective to get rid of the cancer. Therefore, we are now trying to get him back into remission and then he will receive radiation to his whole body and to his brain. He will then need a transplant. Since there is no match for him, he will be getting a partial match. This means the chances are less that his body will accept the new cells and there is a strong chance of infections and possibly rejection. Ben will have to spend about 2 months (July and August) confined to his room in the hospital as he will be at risk for infections. It’s not a way for an 8 year old (or his parents) to spend a summer holiday but we have to do what we have to do. We also have to keep things “normal” as much as we can for his sister, Stephanie.

Had we started this PGD process long ago to have a matching child, we could have been able to give him a match. Now we are forced to stop our efforts to have a match as there is no time. He needs the transplant by late June provided he goes into remission. We are unable to help him with OUR efforts and now leave everything in the

doctors' capable hands.

Speaking of the doctors, I must say that they have been extraordinary in caring for Ben and giving him the best treatment possible. I cannot imagine a job like theirs where they treat children with cancer year after year. They treat each child individually and create a protocol specific for that child. Their eKorts are amazing! Thank you so

much to Dr. Pritchard, Dr. Turnham and all the other doctors that have contributed their expertise and efforts in helping Benjamin at B.C. Children’s Hospital. A BIG thank you also to all the nurses as they have been so sensitive and caring with Ben’s treatment. They are all truly miracle workers.

So Pam and I are walking around like zombies, numb and in shock and disbelief. We need all your positive thoughts and energy for Ben to get through this. If you wish to help with anything, please contact me. Thank you all for checking in on Ben. We will continue to push ahead and try to keep our courage and smile.