Weekend trip, start of chemo & MRI date

Bonjour. It has been a while since I updated Ben's site.

Things have been going relatively well for Ben. Though he has been tired, here and there, Ben has had good energy since being off the chemo and having stopped the radiation over a month ago. He is in good spirits and continues to go to school regularly.

We were called with a date for his next MRI. It will be November 19th with a meeting with the doctor the next day. Most likely, the next phase of chemo will start then. The doctor has mentioned that we are waiting a little longer so we can get the POG (personalized Onco-Genomics) results to possibly better treat the cancer. POG is a clinical trial that enables doctors to get a better picture of the cancer and therefore use drugs that will have a better chance at inhibiting the growth and/or spreading of new cancer growths. In other words it will be a personalized treatment just for Ben that will hopefully eradicate this cancer.

UPDATE: We have a meeting with the doctor on Tuesday regarding maintenance chemo which will commence that day, Nov. 3rd.

Last week, Ben mentioned about maybe going on a little weekend trip somewhere, since he was feeling fine and had no medications to take, besides the anti-seizure medication. So, at the last minute, we found a cheap deal to Las Vegas, where he wanted to return. We spent the weekend there visiting lots of places, exhibits and we took in a Cirque du Soleil show. It was nice to get away a little but quite tiring. It was nice also to forget about all the treatments and have some time to just "relax", though everything was always in the back of our minds. Since our return I've been sick with the flu, as was Stephanie. We're trying to keep our distance from each other as to not pass that on as it's a nasty one.

Ben has been planning, as he always likes to, his Halloween party. This year another bunch of wild teenagers (ok, they're really nice teenagers), will be attending. Ben has planned other parties for the end of the year and Christmas time. This is his first Halloween bash. As always, he plans everything down to the minute and this year is no different. We have been putting things up on the walls, trying our lights and various machines and effects. This should be a really fun one, again. Of course, I will post photos, if I survive!

Thank you for your continued support in thoughts and prayers for Ben.

3 Comments

FRANÇOISE

10/29/2015 03:59:34 pm

Bonsoir Michel, Pam, Ben et Stéphanie,

Merci pour toutes les bonnes nouvelles, Michel. Ben a bien raison, rien de tel qu'une En de semaine dans le paradis artiEciel des

Prairies espagnoles aux États-Unis pour remonter le moral. Il commence à faire froid dans les Prairies canadiennes, l'été indien n'a

pas été un franc succès cette année. Pour la grippe, citron et miel pour adoucir la gorge et curcuma pour faire glisser le virus. Je

suis toujours un peu verklempt en ce temps de l'année mais particulièrement en ce 20e anniversaire. « Passionfruit Orange Guava

», choisis le meilleur POG pour cette boisson hawaïenne, Ben. XOXOXOXO

REPLY

MARLA CHERNOFF

11/3/2015 06:43:02 pm

Nice to read that your family got away for awhile to Las Vegas! Thanks for the update! Continue to support in prayer! Marla

REPLY

FRANÇOISE

11/4/2015 01:02:50 am

Bonjour, Michel, Pam, Ben et Stephanie

Bonne journée pour tous à l'école. Je pensais beaucoup à vous hier. J'espère que Spyro va toujours bien, Ben et qu'il ne s'ennuie

pas trop sans toi et Stéphanie pendant les cours.

Bonnes bises et gros câlins. XOXOXOXO